The family is raising money for the treatment of their child.
A Transcona home is already ready for Halloween. However, this is not to draw attention to the future holiday - it is to raise money for the girl.
Anna Siedler informed that her daughter was diagnosed with NGLY1 Deficiency about a year ago. The girl has a rare genetic disorder.
The parents learned about the terrible diagnosis before their child turned 2 years old. The girl has big developmental problems, she cannot sit or stand, she cannot speak. Anna also added that in the country only 4 children received such a diagnose, and the family needs a large amount of money to conduct all the necessary research and future treatment.
This year, the girl's parents had the idea to turn their home into a fundraising fund for the child, and they ask all caring people to respond and to help solve their problem.
The Grace Science Foundation assists the family and helps in raising money. This organization has been studying NGLY1 Deficiency for already many years.
The house is located at 1137 Devonshire Drive West in Transcona. Raising money will last until the end of the month.
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